Examining the emotional impact and financial strain on caregivers of those with Duchenne muscular dystrophy in Saudi Arabia: findings from a questionnaire-based cross-sectional study

BackgroundDuchenne muscular dystrophy (DMD) is a severe, progressive, and life-limiting neuromuscular disorder that imposes a substantial economic burden on healthcare systems and families. While the clinical severity of DMD is well established, limited data exist regarding its socioeconomic and psychological impacts in Saudi Arabia. This study investigated patient and caregiver demographics, direct out-of-pocket expenditures, caregiver depression and anxiety, and health-related quality of life