Ignorance around hypermobile Ehlers-Danlos syndrome is a public health catastrophe, say readers in response to an article on how sufferers have to wait 21 years for a diagnosis Your coverage of hypermobile Ehlers-Danlos syndrome (hEDS) is a vital start to addressing a systemic public health catastrophe ( UK hypermobility sufferers wait up to 21 years for diagnosis, study suggests, 15 June ). I am 34 and a former drama student who is unable to build any career as hEDS dismantled my life. The cond

Lives are being ruined by undiagnosed hypermobility and lack of treatment | Letter
Guardian Staff
